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	<title>Mr Beller&#039;s Neighborhood &#187; Sarah Fay</title>
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		<title>Things Inside My Head</title>
		<link>http://mrbellersneighborhood.com/2003/09/things-inside-my-head</link>
		<comments>http://mrbellersneighborhood.com/2003/09/things-inside-my-head#comments</comments>
		<pubDate>Fri, 12 Sep 2003 00:00:00 +0000</pubDate>
		<dc:creator>Sarah Fay</dc:creator>
				<category><![CDATA[Brooklyn]]></category>
		<category><![CDATA[Coney Island]]></category>
		<category><![CDATA[Sweet and Sour]]></category>

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		<description><![CDATA[It is a popular misconception that autistics can count hundreds of matches in the blink of an eye and draw fantastic pictures.]]></description>
			<content:encoded><![CDATA[<p>I.
</p>
<p>
It is a popular misconception that autistics can count hundreds of matches<br />
in the blink of an eye and draw fantastic pictures.  In reality, few are<br />
like this and less than one percent fall into the idiot savant category.<br />
Most are mildly to severely retarded and autistic.  Some are autistic and<br />
emotionally disturbed.  Some have Ausberger&#8217;s Syndrome (a mild form of<br />
autism) but exhibit behavior disorders and severe learning disabilities.
</p>
<p>
According to her charts and sheets, Eureka is severely autistic.
</p>
<p>
That&#8217;s it.
</p>
<p>
That&#8217;s all they can conclude.  I look at her and notice only that her hair<br />
is always braided in thick cornrows that stop just below her ears, and she&#8217;s<br />
always dressed in jeans, a man&#8217;s collared shirt and a sweater.
</p>
<p>
She hardly<br />
speaks, but what is more disturbing is that she doesn&#8217;t recognize or<br />
acknowledge me.<br />
I&#8217;ve been with her twice a week for the past five weeks, and she still won&#8217;t<br />
say my name.  As human beings we like to be acknowledged: ninety-percent of<br />
our actions are motivated by the prospect of a reward, raise or compliment.
</p>
<p>
I&#8217;m sure Eureka knows me.  I can see it in her eyes when I enter the room.<br />
&#8220;Hi Eureka,&#8221; I say.
</p>
<p>
Eureka pulls her collar up over her mouth.
</p>
<p>
&#8220;Eureka,&#8221; Ms. Gambino calls.<br />
&#8220;Say hello.  Say hello, Eureka.&#8221;
</p>
<p>
&#8220;Hello Eureka,&#8221; she says, in a dim, brittle voice.
</p>
<p>
&#8220;No, Eureka,&#8221; Ms. Gambino says.  &#8220;Say, Hello, Eureka.&#8221;
</p>
<p>
&#8220;Hello Eureka,&#8221; she says.
</p>
<p>
This isn&#8217;t the first time I&#8217;ve worked with students with echolalia, a<br />
condition of constant echoing or mimicking that many autistics exhibit.<br />
Eureka&#8217;s voice is soft, almost hollow.  It&#8217;s sad.  It&#8217;s as if everything she<br />
says must travel a great distance before it reaches me.  I often feel like<br />
she&#8217;s talking to me from the bottom of the Grand Canyon.
</p>
<p>
Though echolalia is named for Echo, the annoying nymph in Greek mythology<br />
who wouldn&#8217;t be quiet and was condemned by the Gods to repeat other people&#8217;s<br />
words, the students I&#8217;ve met with echolalia don&#8217;t mimic inanely like<br />
parrots; they use it as a tool or defense.  Dexter, whose cranium is so<br />
swollen that he looks like he&#8217;s wearing a turban beneath his baseball hat,<br />
has his own form of echolalia.  He answers every question with a question of<br />
his own.
</p>
<p>
&#8220;Dexter, are these words?&#8221; I ask.
</p>
<p>
&#8220;Words?&#8221; he asks, raising his eyebrows.
</p>
<p>
&#8220;Dexter, are these pictures?&#8221;
</p>
<p>&#8220;Pictures?&#8221;
</p>
<p>
&#8220;Dexter, are these poems?&#8221;
</p>
<p>
&#8220;Poems?&#8221;
</p>
<p>
Kevin, a student I&#8217;ve worked with for two years, mimics because it&#8217;s the<br />
only way he knows how to have conversation.  He listens to what I say and<br />
then waits.  Whether I&#8217;m talking about Schopenhauer or butterflies, he<br />
repeats what I&#8217;ve said as if the words represented his thoughts.  He<br />
presents the information as if he&#8217;s agreeing with me.  In the same way that<br />
I laugh at jokes I don&#8217;t find funny and agree with statements I don&#8217;t like,<br />
Kevin says things he doesn&#8217;t understand.
</p>
<p>
&#8220;Yeah, yeah, pessimism, Ms. Fay.  It&#8217;s all about pessimism,&#8221; he says without<br />
having any idea whether pessimism is something he can eat or feel.
</p>
<p>
Eureka repeats so that we&#8217;ll leave her alone.  Or maybe she does it because<br />
she genuinely wants to give us the answer we&#8217;re looking for.  She wants it<br />
so much that she&#8217;s learned to lift her head, bob up like a diver coming up<br />
for air and repeat whatever we&#8217;ve said.<br />
During a lesson on personification, one in which I try to get the students<br />
to imagine that they are leaves in a tree, I tried to get Eureka to say the<br />
word &#8216;tree.&#8217;  I&#8217;d introduced her to the word &#8216;leaf&#8217; moments before and she<br />
wouldn&#8217;t let it go.
</p>
<p>
&#8220;Tree,&#8217;&#8221;I said, holding up picture of a tree.
</p>
<p>
&#8220;Leaf,&#8221; she said.
</p>
<p>
&#8220;No, Eureka.  Tree.&#8221;
</p>
<p>
&#8220;Leaf.&#8221;
</p>
<p>
&#8220;No, Eureka.  Tree.  Tre-eee.&#8221;
</p>
<p>
&#8220;Leaf,&#8221; she said.
</p>
<p>
&#8220;Tree!&#8221; I said.
</p>
<p>
&#8220;Leaf!&#8221; Eureka cried, matching my enthusiasm.
</p>
<p>
Tomorrow it might change, but today trees and leaves were one in the same. A<br />
tree was a leaf-tree, a tree with leaves.  Why separate?  What&#8217;s the<br />
distinction?  After all, every picture I showed her had leaves on the trees<br />
so in a sense she was right.  I couldn&#8217;t get her to call a tree a tree, but<br />
she was happy to call a leaf a leaf and write about it.<br />
 After our leaf-tree debate was over, I talked to the class about haiku.  I<br />
drew a man on the board with a goatee and glasses and told them his name was<br />
&#8216;Coo.&#8217;  I asked them to say hi to Coo.<br />
&#8220;Hi Coo!&#8221; I screamed.
</p>
<p>
The students said nothing.  Danny stared out the window.  Eureka adjusted<br />
her collar and untied and retied her shoes.<br />
&#8220;Say hi to Coo everyone,&#8221; I said.  &#8220;Hi Coo!&#8221;  I waved to the blackboard.
</p>
<p>
&#8220;Hi to Coo,&#8221; Eureka said.  And so it went.<br />
I asked the students to write the color of leaves on the first line, where<br />
the leaf lives on the second line and something they love to do that doesn&#8217;t<br />
have anything to do with leaves on the third line.  By the end of the<br />
period, Eureka had completed a three-line haiku called, &#8220;Leaf Tree&#8221;:
</p>
<p>
brown leaf
</p>
<p>
in the tree
</p>
<p>
jumping rope
</p>
</p>
<p>
II.
</p>
<p>
The word eureka, or heureka, is Greek for &#8220;I&#8217;ve found it out!&#8221;<br />
Archimedes, the Greek mathematician, inventor and physicist, exclaimed this<br />
word when he discovered how to test the purity of Hiero&#8217;s crown.
</p>
<p>
Supposedly<br />
Archimedes had no idea how to determine whether the crown was made of silver<br />
or gold.  The chances were good that the worker they&#8217;d hired to make the<br />
crown stole the gold and used silver instead (proving life hasn&#8217;t changed<br />
that much in 2200 years), but Archimedes had to prove it.
</p>
<p>
He was perplexed<br />
until one day he got into a bath and noticed that the water rose when he<br />
stepped in.  Delighted, he ran home naked shouting, &#8220;Eureka!  Eureka!&#8221;
</p>
<p>
The students at 721K behave as differently from one another other as a group<br />
of individuals can.  They all have their habits and quirks.
</p>
<p>
When I tell<br />
Jeffrey that it&#8217;s time to work, he immediately pulls up my sleeves.  Then he<br />
pulls up his sleeves as if he&#8217;s a worker in a factory or a farmer about to<br />
go out and work the land.
</p>
<p>
 Venus always shows me her shoes.  Iris takes<br />
time-outs in the hallway holding her doll, Iris.
</p>
<p>
Eureka is always searching for something.  She&#8217;s looking for the right<br />
answer or a way to get someone to take her outside.  She&#8217;s nervously tapping<br />
the desk, waiting for an activity to start.  Sometimes she gets so anxious<br />
that she jumps up from her chair, claps twice in mid-air and sits down<br />
again.
</p>
<p>
She is always looking for a way to get &#8220;water, water, water.&#8221;
</p>
<p>
One of my favorite warm-up exercises is called, &#8220;Things Inside My Head.&#8221;  We<br />
generate a list of things that are inside our heads (our imaginations,<br />
thoughts, feelings), and a list of things around us (tangible objects).  The<br />
distinction may seem simple to you and I, but the difference between<br />
tangible and intangible things is difficult for them to grasp.  </p>
<p.<br />
Never once<br />
does it strike me that this 'lesson' on what is real and what is fabricated<br />
might be the most absurd thing anyone has ever tried to teach an autistic person.
</p>
<p>
 I pass around a handout with the silhouette of a human head drawn on it.  I<br />
ask the students to cut five &#8216;things&#8217; out of the newspaper that they could<br />
hold in their hands.  Then I ask them to cut out five wishes, feelings or<br />
wants.
</p>
<p>
Eureka writes her own words.  She doesn&#8217;t want to use the newspaper, and she<br />
doesn&#8217;t want to cut.  She writes the words &#8216;museum,&#8217; &#8216;art,&#8217; and &#8216;chicken&#8217; on<br />
slips of paper and pastes them down inside her &#8216;head.&#8217;
</p>
<p>
Then she writes,<br />
&#8216;meals on heels,&#8217; &#8216;look at books,&#8217; &#8216;walk around&#8217; and &#8216;drinking water&#8217; and<br />
glues them down inside her &#8216;head&#8217; as well.
</p>
<p>
&#8220;No, Eureka,&#8221; I say.  &#8220;The museum isn&#8217;t inside your head.  You just remember<br />
the museum, don&#8217;t you?&#8221;   They&#8217;d taken a class trip to the Brooklyn Museum<br />
of Art earlier in the week.
</p>
<p>
&#8220;Museum,&#8221; she says.
</p>
<p>
&#8220;Do you remember it or see it in front of you?&#8221; I ask again, pointing at my<br />
temple.
</p>
<p>
&#8220;Museum,&#8221; she says, pointing at her head.<br />
I spend half-an-hour explaining to her that the museum is outside her head,<br />
as are the chickens, art and leaves.
</p>
<p>
She spends the time not looking me in<br />
the eye and straightening her shirt.   I think I am being completely<br />
logical.  I tell her that &#8216;looking at books,&#8217; &#8216;walking around,&#8217; and<br />
&#8216;drinking water&#8217; are pleasures, wishes.  The bell rings.
</p>
<p>
As I walk down the<br />
hall, I start to wonder if it really matters.  Don&#8217;t we carry objects and<br />
people around in our heads?  Don&#8217;t objects and people become more real when<br />
we need or desire them?
</p>
</p>
<p>
III.
</p>
<p>By late June, Eureka still hasn&#8217;t said my name.
</p>
<p>
During one of our last<br />
visits together, I&#8217;m reminded of the myth of Psyche and Eros.  In it, Eros,<br />
the god of love, accidentally pricks himself with his own arrow and falls in<br />
love with Psyche, a plain mortal girl.  </p>
<p.<br />
After they are married, Psyche is<br />
whisked away from her family to a castle on the mountain, where she lives<br />
alone.  Her every need is met, but not by people, only objects:  candles<br />
light her way down the hall, tables set themselves with extravagant dinners,<br />
goblets fill themselves with purple wine.
</p>
<p>
Bodiless voices answer her<br />
questions.  The servants are invisible.  Even her husband comes to her at<br />
night in the form of a voice or occasionally like a breeze.
</p>
<p>
I used to think this myth was a love story, the tale of a woman tragically<br />
trying to have faith in a wonderful man she can&#8217;t see, but now I read it as<br />
the tale of a person overwhelmed by presences.
</p>
<p>
In it, people are<br />
imperceptible.  They&#8217;re imaginary.  It&#8217;s the objects that live.
</p>
<p>
Like Psyche, Eureka is the queen of objects.
</p>
<p>
She takes pleasure in turning<br />
the pages of books.  She never reads them; she goes through them the way<br />
other people do, except more quickly.
</p>
<p>
Often she&#8217;ll stare out the window as<br />
she flips through an issue of Highlights.  She enjoys string so much that if<br />
Ms. Gambino didn&#8217;t stop her, she would tie and retie her shoes a hundred<br />
times a day.
</p>
<p>
She also loves the collars of her shirts and is constantly<br />
readjusting them, less to assure that they&#8217;re straight than to feel the<br />
fabric in her hands.
</p>
<p>
Most of all, Eureka loves water.  She completes her tasks so that she may<br />
get up from her desk and go to the sink and drink.
</p>
<p>
Each time, she wipes her<br />
hands on her sweater, turns on the faucet, puts her fingers in the water and<br />
pulls them out quickly as if the stream shooting out of the faucet were<br />
electric and then slowly lowers her lips.
</p>
<p>
She isn&#8217;t gluttonous.  She sips<br />
from the faucet the same way you or I would, but it&#8217;s more than an activity;<br />
it&#8217;s a reward.  It&#8217;s a ritual.
</p>
<p>
Unfortunately, the myth ends badly for Psyche.  One night she tries to shine<br />
light on her sleeping husband to prove that he&#8217;s not just a voice or a<br />
breeze.  He&#8217;s not a monster.  He&#8217;s human, isn&#8217;t he?  And so is she, right?
</p>
<p>
Using a candle she&#8217;s hidden in the wall, she gets a glimpse of him while<br />
he&#8217;s sleeping.  In modern retellings Eros has the face of Brad Pitt and the<br />
body of Hulk Hogan.  He&#8217;s not a monster after all.  He&#8217;s real.  He&#8217;s really<br />
real. </p>
<p.<br />
While rejoicing in all of his humanness, Psyche accidentally spills<br />
wax on his shoulder.  Her betrayal sends him into a rage.  He turns back<br />
into a breeze and blows out the candle.  His voice condemns her for being so<br />
petty.
</p>
<p>
Then the voice is gone, the castle disappears, and Psyche is left<br />
standing waist-deep in weeds.
</p>
<p>
In one version, Psyche lives out her days as an owl, searching the dark<br />
woods for her lover, calling out to him, &#8220;Who?  Who?&#8221;
</p>
<p>
In another, she is<br />
turned into a bat, an animal that sees only by night.
</p>
<p>
In my favorite<br />
version, Psyche becomes a voice, a whisper.  After living so many days in<br />
the presence of non-beings, the invisible servants and a non-existent<br />
husband, she herself disappears.
</p>
<p>
What will happen to Eureka?  Next year, she?ll be twenty-one.
</p>
<p>
The New York<br />
education system does not allow special education students to attend school<br />
past the age of twenty-one.
</p>
<p>
Eureka will graduate and find a job.  She&#8217;ll<br />
find work washing dishes (water!) or sweeping up in a restaurant or office<br />
building.
</p>
<p>
As long as her mother is still alive, Eureka will be fine.
</p>
<p>
She<br />
can dress herself and go to the bathroom by herself.
</p>
<p>
When I ask Ms. Gambino<br />
what she thinks would happen if Eureka were left on her own with no one to<br />
help her, she tells me that Eureka would be fine.</p>
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